Are you a parent feeling lost, troubled, anxious and scared about the medical condition of your child?
Do you feel like you don’t know what to do or how to go about it?
Is an overwhelming feeling of helplessness slowly starting to encapsulate you?
If the answer is yes to all three, we know exactly how you’re feeling.
We’ve been there ourselves.
We strongly believe that no parent should ever feel this way, and this was the exact reason we started this blog – we wanted a universal platform that would act as a knowledgeable & comforting voice to soothe distraught parents, and also one that would provide the latest and current intel on various children-centric rare diseases in the world, and their treatment.
What can you expect?
We want our blog to be a portal where you can learn, connect and share – being doctors ourselves, we understand the difference it makes when learned professionals write in their views, so our blog will feature quite a few articles from doctors who are experts in rare diseases, as well as solutions via alternative therapies. Look out for weekly articles on rare diseases awareness, nutrition, exercise, stress management, detox practices, and all the works that will help your children and you lead a healthy, happier life.
Social media has been an incomparable blessing to us – we found help for our child, and we strongly plan on reaching out to Facebook, Instagram and Twitter to make people more aware of us, what we stand for, and to find other folks like us who need some much needed assistance. In addition, the integral vision for our blog centers around YOU– we want you to be a big, active part of our blog. Write to us and tell us your story. Send us a picture your child has drawn. Be a technological shoulder of support for struggling families coming to grips with the situation. Reach out and don’t be scared to ask for help yourself. Link us to any interesting articles that you think will help other families on this site.
We’re all fighting the same fight. Help us serve others.
